“The Lord is my rock, my fortress, and my deliverer; my God is my Rock, in whom I take refuge. He is my shield and the horn of my salvation, my strong hold.” Psalm 18:2
My pediatric trach I had to have for a few days. Now I have my T-tube in. I’m breathing, smelling, and tasting. I love it.
When you read my blog you see a theme going on, I ask a lot of questions and fight off a lot of negative rants that go on in my head. One of the main rants is what the heck am I supposed to do now that I am sick and my breathing is affected and how am I supposed to have a life?
This time being at the UW Medical center a few miraculous things started happening. One, I am not coughing as much with my T-Tube as I did a month ago. Yeah! Two, I was able to bless someone and their family by sharing my insight with them. I actually learned a lot from my conversation. One: that God moves in mysterious and often times interesting ways that you do not have any way of knowing when it will happen, it just happens. I love it. Two: I do have a great network of friends, family, doctors, nurses that are standing with me even if they do not totally get what is going on with my body. Three: I am a feisty, spunky gal and that is just how God made me. Four: I am a relational being, who actually does love people, but who also likes to be alone. I love growth oriented people. I am not ashamed to admit that.
While here I have been working on some plans for when I get home. One: I will be calling Dr. Wilson and seeing if he wants to be my ENT while I am in Vancouver and work with me. I have a whole speech I want to say to him with our meeting. I feel like I owe him a shot. I do understand that I am one of those scary patients with issues and if you don’t know the throat and it has issues I can see why he wouldn’t to cause further damage. What I need is an ENT where I live to call for emergencies for supplies, to check the t-tube and meet me in the ER when things happen and work with my team here in Seattle. That is what I need. Since Dr. Anderson, whom I loved left the practice, I need a new one.
Two: I am going to do research about moving to Longview to be with my network of people there family and friends. I have a bigger group of friends and family there who would be willing to take me to the doctor and I don’t have to rely on Rob and Kris, whom I feel are feeling burned out. I do have Myron and he is an amazing helper, but I can still get help even while I am in Longview. I will be able to work with Living Ministries, start my support group for patients like me, and even find a church I can attend to get the spiritual help that I am need. I do need prayer for a great therapist there and a group of growth oriented church goers that I can bond with. Longview is my home town and the reasons for me moving to Vancouver are mute and not going to happen. I can do school on line in Longview, I have a bunch of amazing people to hang out with and they can visit me and Nicholas too. Prayers and any insight would be great. In the meantime, while I am in Vancouver I can start doing the small things I need to do and I am aiming for my 39th birthday to be back in my home town. Who cares if I might run into someone that I used to know, he can kiss my bald head and watch me roll down the street in my fancy wheel chair while hanging with some amazing people.