Burnout Day 20!

    Today’s prompt: It’s the worst. That feeling when nothing seems to be going right for you and you’re not sure when things will turn around. The dreaded, burnout. What does it feel like? What are your burnout triggers?   I want to be negative when I...

Spring Is Here

  The obstacles in my life are happening so that something can be born perfectly. What am I birthing? What has this long journey been showing me? While I have been painfully crawling through the gunk of my life I have been show these things. I am strong. I am...

Adventures In Rehab

  Two weeks down and six weeks to go for my pulmonary rehabilitation and progress are being made just in the three days I have gone. I go two days a week. I woke up Wednesday morning with a fever and dizziness due to my taking of Ciprofloxacin. This medication is...

Improvements In Movement

  I found out on Friday that the pulmonary rehab is already showing signs of improvement in my movement health. While walking the long corridor towards my doctor’s office my heart rate did not go up to 183 or higher like usual. It only reached 156. Yes, it was...

Back In Pink

  For the last 3 to 4 days I have been fighting a bout of insomnia, causing me not to want to do my rehab on Monday. I hate when this happens. This woman loves her sleep and she does not feel like herself without it. Despite feeling this way I went ahead and...

The Road

“I will point out the road that you should follow, I will be your teacher and watch over you. Don’t be stupid like horses and mules that must be led with ropes to make them obey.” Psalms 32:8-11 I am the most stubborn woman. It takes me a long time to make a decision...

Rare Disease Day

  Today is Rare Disease Day. There are over 7,000 rare diseases and I have one of them. All of the diseases are different, but the one thing that is the same is that it affects people no matter what your race or religion is. The effects of being ill often times...

Lofty Goals

Yep, another post about my new exercise program pulmonary rehab. I started reading the booklet this evening, after I took a two hour nap and took a soak in the bathtub to help my legs feel better. I am also having a flare-up this week. My wrist, middle finger on my...

Getting To Know You!

I have had the tune “Getting To Know You” from the Yul Brenner’s movie “The King and I” with Maureen O’Hara from the late 50’s early 60’s stuck in my head. I am getting to know my stomach again. I used to know my stomach well, but that all changed when I had my...

Resting

Yesterday I spent the entire day relaxing in order for my body to heal. I also took a water pill and been peeing a lot in order to get the water retention gone from my body. I see the evidence in my right foot and I hate seeing my foot swollen. It is ugly. I retain...

Challenges

Yesterday was a challenging day, actually the whole week was. Every single day I had something to do and even today I have something to do. I am tired, but I feel good at the same time about what I am accomplishing. It is a bit of a contradiction, but sometimes things...

My Heart Still Beats

I am in Longview. I got here yesterday evening after my doctor appointment. I got my heart results. The good news, my heart is healthy, the correct size, the valves are open, and I am pumping correctly. The heart rate going up while I am walking around is due to my...

Divine Purpose

“You have to be willing to consider that, regardless of the trauma, there is a divine purpose that moves in tandem with every even in your life, painful and joyful.” Carolyn Myss I would love to be assured that the trauma’s that I have suffered in the last four years...

One Milestone

Another mile stone that is happening on my journey is that I can now put my Jaxton trach into the stoma without needing the mirror to guide me. I also learned the value of lube in making sliding the sucker in easier for me. Considering that I have had my trach or some...

Swollen, But Hopeful

Walking down the hallway towards the rec room I felt my body communicating its struggle to breathe, heart racing, difficulty in getting oxygen in the lungs as I moved my body, and a slower than usual pace all leads me to the conclusion that my inflammation is back...

Be Still My Beating Heart!

Wednesday morning I went to the Legacy Good Samaritan to get an Echo Cardiogram done of my heart. I got to see and hear my own heart, what an experience that was. I woke up with not wanting to get up. I wanted to stay curled up in my bed sleeping with my cat. I forced...

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