Yeah Me!

by | Jul 3, 2013 | Auto-immune, The Magnificent Journey, Weight

  Wednesday is here again, and Independence Day is upon us. I loathe Independence Day, not because I am not patriotic. I love my country, I just don’t like all the explosions that happen and how some individuals don’t use their brains very well during this time...

Cartwheels Time!

by | Jun 19, 2013 | Auto-immune, The Magnificent Journey, Weight

  Time for my weekly update, I like writing my updates on Jamie Chases Butterflies. It helps me stay on what my goals are and when I feel that I am not making progress it shows that I am actually. I know I get discouraged when I think my life isn’t going anywhere...

Tiredness

by | Jun 18, 2013 | Auto-immune, The Magnificent Journey

I am tired. Not just physically tired, emotionally and spiritually tired as well. I am tired of going to the doctor. I am tired of taking the medications I have to. I am tired of having to breathe with a steel trach in my throat. I am just plain old tired. I am sure...

Infusion Day!

by | Jun 5, 2013 | Auto-immune, The Magnificent Journey

    Infusion day has arrived. All day from 9 AM until 4:30 PM I have been in the clinic receiving my Rituximab infusion which helps my auto-immune disease. Even though I am not feeling well I know that this drug helps my inflammation and will allow me to live my life....

Burnout Day 20!

by | Apr 21, 2013 | Auto-immune, The Magnificent Journey

    Today’s prompt: It’s the worst. That feeling when nothing seems to be going right for you and you’re not sure when things will turn around. The dreaded, burnout. What does it feel like? What are your burnout triggers?   I want to be negative when I...

Spring Is Here

by | Mar 28, 2013 | Auto-immune, The Magnificent Journey

  The obstacles in my life are happening so that something can be born perfectly. What am I birthing? What has this long journey been showing me? While I have been painfully crawling through the gunk of my life I have been show these things. I am strong. I am...

Adventures In Rehab

by | Mar 14, 2013 | Auto-immune, The Magnificent Journey

  Two weeks down and six weeks to go for my pulmonary rehabilitation and progress are being made just in the three days I have gone. I go two days a week. I woke up Wednesday morning with a fever and dizziness due to my taking of Ciprofloxacin. This medication is...

Improvements In Movement

by | Mar 9, 2013 | Auto-immune, The Magnificent Journey

  I found out on Friday that the pulmonary rehab is already showing signs of improvement in my movement health. While walking the long corridor towards my doctor’s office my heart rate did not go up to 183 or higher like usual. It only reached 156. Yes, it was...

Back In Pink

by | Mar 4, 2013 | Auto-immune, The Magnificent Journey

  For the last 3 to 4 days I have been fighting a bout of insomnia, causing me not to want to do my rehab on Monday. I hate when this happens. This woman loves her sleep and she does not feel like herself without it. Despite feeling this way I went ahead and...

The Road

by | Mar 3, 2013 | Auto-immune, The Magnificent Journey

“I will point out the road that you should follow, I will be your teacher and watch over you. Don’t be stupid like horses and mules that must be led with ropes to make them obey.” Psalms 32:8-11 I am the most stubborn woman. It takes me a long time to make a decision...

Rare Disease Day

by | Feb 28, 2013 | Auto-immune, The Magnificent Journey

  Today is Rare Disease Day. There are over 7,000 rare diseases and I have one of them. All of the diseases are different, but the one thing that is the same is that it affects people no matter what your race or religion is. The effects of being ill often times...

Lofty Goals

by | Feb 27, 2013 | Auto-immune, The Magnificent Journey

Yep, another post about my new exercise program pulmonary rehab. I started reading the booklet this evening, after I took a two hour nap and took a soak in the bathtub to help my legs feel better. I am also having a flare-up this week. My wrist, middle finger on my...

Getting To Know You!

by | Jan 31, 2013 | Auto-immune, The Magnificent Journey

I have had the tune “Getting To Know You” from the Yul Brenner’s movie “The King and I” with Maureen O’Hara from the late 50’s early 60’s stuck in my head. I am getting to know my stomach again. I used to know my stomach well, but that all changed when I had my...

Resting

by | Jan 27, 2013 | Auto-immune, The Magnificent Journey

Yesterday I spent the entire day relaxing in order for my body to heal. I also took a water pill and been peeing a lot in order to get the water retention gone from my body. I see the evidence in my right foot and I hate seeing my foot swollen. It is ugly. I retain...

Challenges

by | Jan 19, 2013 | Auto-immune, The Magnificent Journey

Yesterday was a challenging day, actually the whole week was. Every single day I had something to do and even today I have something to do. I am tired, but I feel good at the same time about what I am accomplishing. It is a bit of a contradiction, but sometimes things...

My Heart Still Beats

by | Jan 16, 2013 | Auto-immune, The Magnificent Journey

I am in Longview. I got here yesterday evening after my doctor appointment. I got my heart results. The good news, my heart is healthy, the correct size, the valves are open, and I am pumping correctly. The heart rate going up while I am walking around is due to my...

Divine Purpose

by | Jan 5, 2013 | Auto-immune, The Magnificent Journey

“You have to be willing to consider that, regardless of the trauma, there is a divine purpose that moves in tandem with every even in your life, painful and joyful.” Carolyn Myss I would love to be assured that the trauma’s that I have suffered in the last four years...

One Milestone

by | Jan 4, 2013 | Auto-immune, The Magnificent Journey

Another mile stone that is happening on my journey is that I can now put my Jaxton trach into the stoma without needing the mirror to guide me. I also learned the value of lube in making sliding the sucker in easier for me. Considering that I have had my trach or some...

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