Starting Where I Am At

  I have been on a roller coaster ride this last year. From the extreme highs with the numerous hopeful news of getting rid of my trach. To the extreme lows of having to keep my trach because of some new challenge. I feel like I have been throat punched far too...

Trach Care

I felt compelled to write about my trach. What has brought this up? Well, when I went in to get my CT scan. I had to switch my steal trach to a plastic so that it wouldn’t shine on the CT scan.  The nurse was fearful of my trach. And it had me concern. If a medical...

Obstacles

I am faced with another obstacle in my life. Of course, it is still my throat. Below my voice box this time around. It is jammed full of scar tissue. So full in fact that the doctor was amazed that I was still able to speak. There is no air flow coming through the...

Balm for the Soul.

A year ago I set out on a reading journey. I don’t remember ever reading the bible all the way through. I knew scriptures. Ones that I have memorized in Sunday school and those I think of that my dad or mom would quote or my brother or sisters would. When I got sick,...

Finding My Mojo

While reading Job chapter 10, the first verse hit me hard. Job says “I am weary of my life and loathe it! I will give free expression to my complaint; I will speak in the bitterness of my soul.” Job was having a bad day. Actually he was having a bad month. He was...

I”m Back!

  Amazing how receiving flowers can brighten someone’s day. My neighbor brought me some gorgeous red and yellow mums. He won them and he thought that I would enjoy them. The last couple of weeks, actually if I were to be honest the last few months have been tough...

30 Things

Invisible Illness Week will be upon us in a week. This years theme is “Just One”. I love it. Here is my meme for 30 things you didn’t know.   1. The illness I live with is: Wegener’s and Rheumatoid arthritis. 2. I was diagnosed with it in the...

Beginning Again!

  The last month I have been in a funky mood. The disappointment of not getting rid of my trach because of the swelling after my surgery had me reeling. I needed to take some time to reflect and make choices in where I want to go. While reflecting I slept a lot,...

Hiit It!

  Moving has been one of the things that I have missed since I’ve started my healing journey with my Vasculitis 5 years ago. Since my first surgery in 2009 until my last one July 24, 2014 I have been dreaming about moving my body. This last surgery gave me more...

C-Dif

Saturday evening I woke up throwing up and having diaherra. Not fun at all. I ended up throwing up a lot of the soup I had that day. I didn’t even digest my meals or the pain medication that I took. I texted my caregiver, my neighbor, and my sister in hopes that...

I am Blessed

  I am sitting on my bed enjoying the atmosphere of my home. I am sad to report that my surgery on July 24th did not go as planned. I had my sister Carri write down what Dr. Anderson said to her and my brother Rob while I was in recovery. Trachea is small like a...

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