A Letter

by | Oct 1, 2012 | Auto-immune, The Magnificent Journey

A friend on Facebook messaged me last night and asked some questions. Here are my answers, I did send it to her, but I let out a lot of emotional stuff, so I thought it would make a good post for today. Hi Valerie, As Promised here are the self-evaluation questions...

Operation Relaxation!

by | Sep 30, 2012 | The Magnificent Journey

(My equipment, suction device, nebulizer, and hemidifier.) I had a day of relaxation. I needed it, especially after last night’s scare. Around 3 in the morning I felt a clog coming on. Of course, that meant I needed to suction, lavage, and nebulize myself in order to...

My Inner Artist

by | Sep 29, 2012 | Auto-immune, Books/Music, The Magnificent Journey

“The Artist Way” by Julia Cameron is a book that has been around for a long time. I finally got my hands on a copy of the book and the journal that comes with it. I am just starting week three of the exercises that she has you do to unblock your creativity. I have not...

Try Or Am I Too Tired!

by | Sep 28, 2012 | Auto-immune, The Magnificent Journey

I am in pain today. My back and sides are hurting making it difficult for me to walk. I did not feel like doing anything at all today. Myron walks in his usual way full of energy and vinegar and challenged me to get up out of bed. My negativity can go on; I have not...

Negative Monsters!

by | Sep 27, 2012 | The Magnificent Journey

I bet you have been wondering what happened to me. Nothing too exciting I can report in great details about finding a million dollar check in the mail, or flying off to Italy (sigh, I wish) or another great trip to the hospital. Nope, I lost my Internet due to my...

Self-Care

by | Sep 12, 2012 | Auto-immune, The Magnificent Journey

I decided that I will be meditating on bad nights and self-care. I am not talking about those nights when you are full of emotions because the neighbors just won’t stop playing their loud Twisted Sister records all night and you have to act like Dee Snider and bust...

Sleep, Who Needs It?

by | Sep 10, 2012 | Auto-immune, The Magnificent Journey

I am participating in the virtual conference about invisible illness this week and let me tell you there are some great speakers this year. Check it out at: http://invisibleillnessweek.com/virtual-conference-2/ I am writing this post for Erwin. I met Erwin and his...

Thankful Heart!

by | Sep 9, 2012 | Auto-immune, The Magnificent Journey

Happy Sunday! I am happy to say that I am home. Yes, it is 4:30 in the morning. I have to get up in order to suction and nebulize myself in order to keep the mucus thin enough so that I do not get giant clogs. Whatever it takes to keep me breathing, moving forward,...

God’s Synchronicity

by | Sep 6, 2012 | Auto-immune, The Magnificent Journey

“The Lord is my rock, my fortress, and my deliverer; my God is my Rock, in whom I take refuge. He is my shield and the horn of my salvation, my strong hold.” Psalm 18:2 My pediatric trach I had to have for a few days. Now I have my T-tube in. I’m...

Where Is The Drano When You Need It?

by | Sep 1, 2012 | The Magnificent Journey

I am in Seattle again. Last night a gigantic clog decided it needed to come up through my t-tube at one in the morning. I suctioned and irrigated for an hour before I decided to call 911 for help. I knew I needed to yank the T-Tube out with my clamps and since I have...

Stronger 3

by | Aug 17, 2012 | Auto-immune, The Magnificent Journey

What a day! I drove three hours to Seattle in order to visit my Rhematologist and my ENT. I love my doctors. They truly do seem to care, even if things happen that I don’t like. Dr. Gardner, my Rhematologist went well. I finally succumbed to the advice of my sisters...

Stronger: Chapter Two

by | Aug 14, 2012 | The Magnificent Journey

(My view from the picnic table where I ate my yummy sandwich) I woke up in a crappy mood. I have been home from the hospital for a week now and my voice is taking its sweet time coming back. I am glad I had the surgery, don’t get me wrong. I love being able to breath...

Stronger Chapter One

by | Aug 13, 2012 | Auto-immune, The Magnificent Journey

“If you are ready to find real fulfillment, now is the time to start your new journey.” Oprah Winfrey What does my journey look like now that I got a permanent solution to my subglottic stenosis? Let me be clear about one thing. I am not happy about the solution that...

Home Sweet Home!

by | Aug 10, 2012 | Auto-immune, The Magnificent Journey

I am home. I am happy to be home. Melissa one of the wonderful nurses at the hospital told me she didn’t want me to leave, but I did want to leave. I missed my bed, my space, my people, not that the people at the hospital weren’t wonderful. I had some amazing nurses,...

Courage

by | Aug 6, 2012 | The Magnificent Journey

Looks like I will be staying a couple more nights in the hospital. I will be having another surgery tomorrow in order for them to lower the T-stent in my throat. Currently, the upper part of the t-stent is pressing on my voice cords and making it difficult for me to...

Practice Makes Perfect!

by | Aug 5, 2012 | Auto-immune, The Magnificent Journey

Happy Sunday! If you suspect that I am still in the hospital, you would be correct. I am still here. One of the student doctors came in and she told me that I will be going home for sure tomorrow. I had to make a couple of phone calls, one of course to Myron, my...

Always Waiting!

by | Aug 4, 2012 | Auto-immune, The Magnificent Journey

I woke up this morning expecting to be heading home to Vancouver, but once again my plains were derailed by someone else. I have to stay two more days in the hospital simply because Dr. Hillel wants me to be absolutely sure that I can take care of my t-stent tube. I...

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