by Jamie Holloway | Sep 28, 2012 | Auto-immune, The Magnificent Journey
Lately, I have found myself getting angrier as time goes by; I get frustrated by the fact that I have an incurable disease. That I have to suction, lavage, nebulize daily several times a day so that I do not have a huge clog come up and then I have to save my own life...
by Jamie Holloway | Sep 27, 2012 | The Magnificent Journey
I bet you have been wondering what happened to me. Nothing too exciting I can report in great details about finding a million dollar check in the mail, or flying off to Italy (sigh, I wish) or another great trip to the hospital. Nope, I lost my Internet due to my...
by Jamie Holloway | Sep 12, 2012 | Auto-immune, The Magnificent Journey
I decided that I will be meditating on bad nights and self-care. I am not talking about those nights when you are full of emotions because the neighbors just won’t stop playing their loud Twisted Sister records all night and you have to act like Dee Snider and bust...
by Jamie Holloway | Sep 10, 2012 | Auto-immune, The Magnificent Journey
I am participating in the virtual conference about invisible illness this week and let me tell you there are some great speakers this year. Check it out at: http://invisibleillnessweek.com/virtual-conference-2/ I am writing this post for Erwin. I met Erwin and his...
by Jamie Holloway | Sep 9, 2012 | Auto-immune, The Magnificent Journey
Monday is the start of Chronic Illness awareness month. There is so much I want to write about, express, and I see some amazing ideas from amazing writers that share their own experiences. I will be taking a word and expanding my own illness and life surround a...
by Jamie Holloway | Sep 9, 2012 | Auto-immune, The Magnificent Journey
Happy Sunday! I am happy to say that I am home. Yes, it is 4:30 in the morning. I have to get up in order to suction and nebulize myself in order to keep the mucus thin enough so that I do not get giant clogs. Whatever it takes to keep me breathing, moving forward,...
by Jamie Holloway | Sep 6, 2012 | Auto-immune, The Magnificent Journey
“The Lord is my rock, my fortress, and my deliverer; my God is my Rock, in whom I take refuge. He is my shield and the horn of my salvation, my strong hold.” Psalm 18:2 My pediatric trach I had to have for a few days. Now I have my T-tube in. I’m...
by Jamie Holloway | Sep 2, 2012 | Auto-immune, The Magnificent Journey
A conversation I had with my friend Summer while she, Karen, and I were driving from Vancouver/Longview to Seattle so that I can get the help I needed for my Subglottic Stenosis in my throat and the adventure I had in the ER. You can read about it in my post before...
by Jamie Holloway | Sep 1, 2012 | Auto-immune, The Magnificent Journey
1. The illness I live with is: I have a Vasculitis disease called Wegener’s granulomatosis 2. I was diagnosed with it in the year: was finally diagnosed in 2011 3. But I had symptoms since: 2008 4. The biggest adjustment I’ve had to make is: The biggest adjustment I...
by Jamie Holloway | Sep 1, 2012 | The Magnificent Journey
I am in Seattle again. Last night a gigantic clog decided it needed to come up through my t-tube at one in the morning. I suctioned and irrigated for an hour before I decided to call 911 for help. I knew I needed to yank the T-Tube out with my clamps and since I have...
Please wait...